[COMMUNICATED]We need your help to save our boys, Shalom Binyomin, “Benny” and Yehoshua Natan, “Josh”. Benny and Josh were diagnosed with a devastating, fatal disease called Canavan Disease two and half years ago. Their diagnosis changed our lives forever.
Canavan Disease is a progressive brain disorder caused by a genetic mutation that affects children. Children with Canavan Disease are unable to sit, stand, walk or talk. As degeneration progresses, many children will lose the ability to swallow, develop seizures, and experience blindness. Children with Canavan Disease often don’t live past age 10.
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